Degrees of Difficulty
"Maybe a full day of rest, without the kids, without Ben, soaking in the tub, without Perry, too, was what she needed. Maybe tomorrow she would kick into gear."
I literally could not put this book down. It is a truly memorable story of a family facing the difficulty of raising a child with special needs. More than just the story of this young boy, the book relates the impact on the lives of each of the family members. As they try to cope in their own way the story becomes one in which each member, two older siblings and their parents, find themselves breaking under the pressures of living with and caring for the very demanding dependent young boy.
The narrative follows the experiences of each member of the family: mother Caroline, father Perry, the two older children Hugo and Ivy focusing on each, chapter by chapter. Their lives and relations with each other are shared as they handle the every day and the added burden of the youngest boy, Ben, who is mentally-challenged and prone to severe seizures. At one point, after Ben has been rejected by yet another institution, Perry thinks to himself that it has been "one long and desperate road." That seems an appropriate metaphor for much of what each member of the family encounters in this story.
The author invokes prose that is both suspenseful and beautiful in relating important moments in their lives. The difficulties mount, but there is more to the story than just hardships. Rather it is a complex tale in which their lives are not completely subsumed by sadness and strains as they also experience moments of joy and contemplation that ameliorate the pain in their lives. This is an exceptional first novel from the pen of Julie E. Justicz. Readers who enjoy well-written narratives of real people dealing with the vicissitudes of life will appreciate her novel.
Degrees of Difficulty by Julie E. Justicz, Fomite, Burlington, VT, 2019.
2 comments:
Great commentary James. I had heard good things about this book. I can see that if something like this is well written that it could be so compelling. I also see how life under circumstances like this could become so difficult.
Brian,
This was a delight to read in spite of the difficulties the family experienced raising their mentally-challenged child. We were fortunate to have the author join our book group for our discussion of her book.
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